I am Jessica Langenhoff, Human Movement Scientist and biomedical information specialist. Diagnosed chromodiverse as an adult. Mom to a teenage son. My aim is to make biomedical information accessible to as many people as possible. Especially scientific biomedical information to people living with diagnoses. In this way, I try to build a bridge between science and everyday living. Also the reverse can be true: giving scientists and healthcare professionals input for their efforts to help people with diagnoses. Both by retrieval and summarizing of scientific evidence and by voicing what lives within the community of chromodiverse people.
I started XXs2info (access to info) in 2020. I saw an opportunity to combine communication and information services in one. After two years, I stopped as XXs2info suffered failure to thrive. I look back without regrets: at least I gave it a try and I learned so much from it.
As a volunteer, I am still active, supporting several patient advocacy groups and a small network organisation. I am a webmaster, doing maintenance for one and building a new for another organisation. Writing texts and providing illustrative photos, translating from English to Dutch and writing plain language summaries…